Making my voice heard

Nicole works as a medical scribe, cares for her younger sister, and maintains an active social media presence in support of the VWD community—all while supporting her own family. Nicole has endured a long and difficult road to her diagnosis of severe type 1 VWD. In fact, she was not diagnosed with VWD until she was 16 years old. Nicole feels fortunate to have found a hemophilia treatment center that helps her feel seen, heard, and important.

What makes Nicole feel valued? To know that she is an essential member of her own healthcare team. Nicole is involved in her own treatment decisions and care.